Patience

Patience has never really been my strength... right now I really need it! I need to not focus so much on when they are coming home, but focus on the fact that they ARE improving. The girls have now been off of O2 since Monday. They've had ups and downs since then. Yesterday I assumed they'd be home this weekend. Today, I'm not so sure. All I know is that they will tell us 3-5 days before the day they can come home. The hang up now is their feedings. One day Mady does well and Emma doesn't. The next day it's the opposite. They are having some trouble on occasion with the suck, swallow, breathe thing. Emma turned dusky on me yesterday and we had to turn her upside down and pat her back pretty hard to get her back to normal color. Last night, during the late night feeding, Madelyn did the same and had a B (drop in heartrate). They will not release them as long as this continues, nor do we want them to. We want them safe. However, at 60 days, it's killing us to not have them home. They are so much more alert now. They are smiling more. They are making more noises. They know who we are! On the plus side, they do great when nursing and have no issues when they are. And, while their improvement is very very slow, they ARE improving. They ARE doing great for girls born more than 2 months early.

We are reconsidering moving them to TIC (transitional infant care). The DR thinks at this point it may be a good move because it will offer them more one-on-one care, a better developmental atmosphere, and will teach us how to work with home monitors just in case they need them. It's a little further for us to travel, but not much. It's near the new Children's Hospital in Pittsburgh. Christian and I are so indecisive... but maybe this is what they need to get home?!